Tourette's syndrome -- the alchemy of chaos: Jess Thom at TEDxAlbertopolis
Find out how Jess Thom is "changing the world one tic at a time" in this inspiring TEDx talk. Thom has Tourette's Syndrome and says 'biscuit' sixteen times a minute. A visual artist and a graduate of the Royal College of Art, she founded Touretteshero to celebrate the humour that can emerge from Tourette's, challenge misconceptions about the syndrome and encourage people to familiarise themselves with the creative opportunities it presents. In the spirit of ideas worth spreading
URMC will expand care for individuals with Tourette Syndrome
Patti Singer, Democrat and Chronicle staff writer, reports that "Families dealing with Tourette syndrome will have what amounts to an all-star team to coordinate care as the University of Rochester Medical Center joins a consortium to treat tic disorders. The Tourette clinic at URMC will be partnering with three downstate hospitals to form a center of excellence, as designated by the national Tourette Syndrome Association. The group is one of 10 designated centers of excellence in the nation. Of those, the URMC group is one of three that is receiving up to $50,000 a year for three years from the organization to improve care for people living with the disorder."
Click this link to read the pdf of the D&C article..
Tourette Syndrome: Research Update
Information from the 2012 Tourette Syndrome Association National Conference held in Arlington Virginia. This Research Update includes University of Rochester neurologist, Dr. Jonathan Mink, MD, PhD; Tamara Hershey, PhD; and Domenico Servello, MD, PhD.
Click this link to watch the video of the talk.
New prenatal risk factors for Tourette syndrome and tic disorders identified
In a prospective study of 6090 children from the Avon Longitudinal Study of Parents and Children, researchers found that maternal alcohol and cannabis use, inadequate maternal weight gain and being first born were each significantly associated with the development of Tourette syndrome or Tourette syndrome/chronic tic disorder in offspring by the age of 13 or 14 years. A total of 50 teens developed Tourette syndrome, and 72 developed chronic tic disorders. The most significant risk factor for development of the disorders was inadequate maternal weight gain.
Click this link to read more.
Targeted Behavioral Therapy can effectively control tics in adults with Tourette Syndrome
A comprehensive behavioral intervention is more effective than supportive therapy and education in helping adults control the tics associated with Tourette syndrome, according to an NIMH-funded study published in the August 2012 issue of the Archives of General Psychiatry. The study follows a previous study involving children with the disorder, which showed similar results.
Click here to read about the study.
Comprehensive Behavioral Intervention for Tics effective in reducing tics in adults
Tics in Tourette syndrome begin in childhood, peak in early adolescence, and often decrease by early adulthood. However, some adult patients continue to have impairing tics. Medications for tics are often effective but can cause adverse effects. This study found that the use of a new specific behavior therapy "Comprehensive Behavioral Intervention for Tics, or CBIT) was effective in decreasing the severity of tics in adults. The study was published in the Archives of General Psychiatry 2012.
Click here to read about the study.
Click here to go the journal article
Co-occurring ADHD may be at the root of attention problems in children with Tourette syndrome
Co-occurring attention deficit hyperactivity disorder (ADHD) may be at the root of attention problems in children with Tourette syndrome (TS), according to NIMH-funded researchers. Their findings also support the theory that children with TS develop different patterns of brain activity in order to function at the same level as children without TS. The study was published in the November 2010 issue of the Journal of the American Academy of Child & Adolescent Psychiatry.
Read the full article here
Attention problems in Tourettes due to comorbid ADHD
A new study suggests that the Attention problems seen in children with Tourette Syndrome are most likely due to comorbid ADHD rather that to the Tourette Syndrome. The study also suggested that children with Tourette Syndrome develop a response inhibition compensatory neural strategies.
To read more about the study click on this link.
Tourette Syndrome update on treatment
A new article by Dr. Roger Kurlan published in the New England Journal of Medicine provides a comprehensive overview for the treatment of Tourette Syndrome.
Click this link to be taken to the Journal.
Anxiety/Panic Disorder most severe associated disorder in Tourette Syndrome
New Research shows that anxiety/panic disorder is the most functionally disabling associated disorder in adults with Tourette's syndrome (TS), according to research presented at the Movement Disorder Society 14th International Congress of Parkinson's Disease and Movement Disorders.
Treating tics through CBIT
New Research finds that Behavioral Intervention can effectively control Tics in many children with Tourette Syndrome. The research found that comprehensive behavioral therapy was more effective than basic supportive therapy and education in helping children with Tourette syndrome manage their tics. The study was published May 19, 2010, in a special issue of the Journal of the American Medication Association dedicated to mental health. The study tested the effectiveness of a Comprehensive Behavioral Intervention for Tics (CBIT), a therapy based on habit reversal training that includes two concepts—tic-awareness and competing-response training. Tic-awareness training teaches the child how to self-monitor for early signs that a tic is about to occur. Competing-response training teaches the child how to engage in a voluntary behavior designed to be physically incompatible with the impending tic, thereby disrupting the cycle and decreasing the tic. For example, a child with vocal tics who blurts out words or sounds inappropriately may be taught slow rhythmic breathing techniques to manage the urge to vocalize. The study also involved teaching parents how to respond to their child's tics.
To hear a radio interview with the author of the study click on this link.
Deep Brain Stimulation Reduces Tic Severity in Intractable Tourette Syndrome
New Study finds that Deep Brain Stimulation reduces Tic Severity in Intractable Tourette Syndrome. Deep Brain Stimulation is a surgical procedure in which an electrode is placed in the brain at the site where the tics originate. This is connected to a surgically implanted device(about the size of a watch). This provides ongoing stimulation of that brain tissue that overrides the faulty electric signals that otherwise would produce the tics.